Cystic Fibrosis is a genetic disease that affects the lungs and digestive system of approximately 30,000 Americans. There are many variations of the disease, affecting people to different severities, and life expectancy is about 39 years. That's just not enough.
On the outside, Chloe looks every bit the healthy and active child. And she is - thanks to her daily routine that is just a bit different than the average 11 year old's. Chloe takes about 21 pills/tablets a day, that's7,665 in a year. In addition to those, she also takes 3 other daily medications via inhaler and nebulizer treatments. She spends an hour of her day,365 hoursa year, hooked up to a nebulizer and a machine that beats her lungs.
The hardest part of all this for Chloe is sitting for that hour each day. She is rambunctious and active and not meant for stillness! She takes all that medication without complaint and does treatment, most days, with a positive attitude. Chloe faces CF brave and strong; she will not be held back or knocked down because she refuses to let CF be her life. We dream of a future where more of her day will be spent living and less of it occupied with medicines and treatments.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support Chloe and other with CF by making a donation to our Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Thank you, for your support!!
Help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.