Join Team Rose Petals and help add tomorrows!
Vivian spends at least an hour and a half every day doing chest physiotherapy treatments along with 5 nebulizer breathing treatments to keep her healthy. There is no cure for CF which is why events like Great Strides are so important to raise awareness and valuable funds.
The last year has been a huge year for Vivian!! She is active in playing soccer and participating in gymnastics and cheer, which is great for her lungs! Vivian has been taking Trikafta for 2 years. It is the most ground breaking drug to date to fight against CF. It's not a cure but it's a huge step in the right direction. Trikafta and the long list of other medications and therapies are extremely expensive to both develop and deliver to patients who drastically need them. Events like these, raise valuable funds to continue the long battle to find a cure.
Thank you all for your incredibly generous love and support.
Love and Gratitude,
The Jistels
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.