Our daughter Zoey is two years old and was diagnosed with cystic fibrosis shortly after birth. It's a rare, genetic, life-shortening disease that makes breathing difficult.
We have a goal to find a cure for cystic fibrosis in Zoey's lifetime, and we can't do that without fundraising for new therapies and medication but, ultimately, a cure. Already the Cystic Fibrosis Foundation is leading the way in the fight against CF, fueling extraordinary medical and scientific progress. Zoey has responded amazingly to these therapies and medications. Overall, she has been doing great and is a super happy child despite the disease and the typical toddler tantrums.
The life expectancy of CF patients has doubled in the last 30 years. Last year the life expectancy was revised to 50 years. A significant improvement, but we won't stop until we find a cure!
We walk in Great Strides for Zoey but also for other people who struggle with cystic fibrosis.
Love, Miranda, Jordi, Luca, and Zoey
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
The 5k walk starts at Q2 / Austin FC stadium at 9 am on May 14, 2022. Walk with us by joining our team! Just click on the "Join our Team" button. From there, you can donate and join the walk.
But if you can't make it, please consider donating, as it helps find a cure for children (and adults!) with CF worldwide.
By joining our Great Strides team and donating, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.