Both of my children have CF. In years past we did the walk to raise awareness about CF and to help raise money for research. In 2011 we had more of a reason to help find a cure...my daughter Amberlyn passed away from CF. My son Phillip still continues to battle CF everyday. He has found his true love wotj Jessie. They got married on March 18, 2017 and now are trying to have a baby. :-) We need to find a CURE so they can live a long & happy life and build a family together!!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I will walk for them and hope you will support me in my efforts.
Amberlyn was 22 years old when she passed away on November 18th, 2011. Her passing left a big void in our family. Amberlyn and her brother Phillip were very close. Before her passing, Amberlyn's main concern was her brother Phillip. She did not want her brother to have to go through what she was going through. It terrified her and she said that even though it was too late for her, we NEED to find a cure for her brother. No parent should ever have to lose a child or watch them struggle with a horrible disease such as Cystic Fibrosis.
The goal of our team "CF BOUNTY HUNTERS" is to raise $7,777.77 but we are hoping to raise even more than that.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. There are so many things that are promising for those that suffer with CF. But we need your help to continue that research. 90 cents of EVERY dollar goes to help finding a cure!!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Thank you in advance for helping me to add more tomorrows for all who suffer from CF including my son Phillip.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.