Please support me in my efforts to find a cure for cystic fibrosis!!
My heart was drawn to this cause over 10 years ago when I met the “Fighting Twins” - Maren & Berne. I was lucky enough to get to know these two kiddos when I was their babysitter for a couple years during grad school. While spending time with Maren & Berne, I saw first hand the struggles people with CF face every day. Hours of breathing treatments, hundreds of pills and medications and, a constant risk of lung infections which can lead to hospitalizations. It is a never-ending cycle of trying to prevent the disease taking over. CF is also described as an invisible disease. While most people with CF may look "healthy," there is a battle going on inside the body. Over time, people with CF struggle with lung function and simply breathing.
8 years ago, I was lucky enough to get a job working for the Cystic Fibrosis Foundation. I am proud to work for an organization that is making a impact in the lives of people with CF. Back in the 1950’s before there was treatment for CF – children were not likely to make it to Kindergarten. Now, due to the efforts of the CF Foundation, the life expectancy is up to 47 years young. (Much better - but STILL not good enough). Also - because CF is a rare disease – the CF Foundation gets no government funding and relies solely on private donations to fund research.
Since working for the CF Foundation, my passion for this cause has only grown as I meet people every day who battle this disease. The best part of my job is working with local CF families and I now care about SO many people affected by this disease. And I’m here to say there is HOPE. In my five short years working for the CF Foundation, real progress has been and now there are several drugs on the market that treat the basic defect of the disease. However, CF is a complicated disease and these medications to not help everyone. There is still no cure for this devastating disease and many lives are cut far too short.
So.... if you go through your without having to think about your breathing, I ask you consider a donation – or any amount you can contribute would be appreciated to help those who have CF.
Until It’s Done!