Michael Tully

Event: Austin

| Team: House Tully - A Cure Is Coming

Michael's Fundraising Goal: $1,000.00

| Amount Raised: $2,100.00

100%

My Great Strides Story

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This cause is close to my heart as my daughter Frankie and my cousin Kaitlyn are impacted by the disease. They endure hours of breathing treatments, hundreds of pills, and a constant risk of lung infections which can lead to hospitalizations. Frankie also got a feeding tube inserted this year because her food intake simpy could not keep up with the energy her body required to function. While those with CF may "look healthy," there is a battle raging inside the body which demands constant effort to prevent the disease from taking over.

Thankfully, the Cystic Fibrosis Foundation has had immense success pioneering its venture philanthropy model. In the 1950's, CF children were not likely to live long enough to make it to Kindergarten. Now, due to the efforts of the CF Foundation, half of those born with CF are expected to live until their late 40's. While we celebrate these advances and the efforts of those before us, we will not be satisfied until there is a CURE for all those with CF.

This is an exciting time for CF research. There are several medications on the market that correct the underlying genetic defect caused by the disease, and we're hoping one is approved for Frankie's age soon. But, because CF is a rare disease, the CF Foundation gets no government funding and relies solely on private donations to fund research. Your donation today not only helps Frankie gain access to improved treatments and a longer life -- it also furthers the Foundation's groundbreaking research which will benefit other genetic diseases and advance medical technology for all.

It's always a little hard to ask, but if you are able to help, please consider a donation to support Frankie and those with CF. The daily battle to stay healthy wears us down, but when we can actively be involved in the fight for a cure, it lifts us up! We thank you from the bottom of our hearts for all the love and generosity you show!

Achievements

T-Shirt

Raised the amount of money defined for this milestone

Personal Progress:

of Goal

$2,100 Raised

$1,000.00

Fundraising Honor Roll

Anonymous

Elizabeth Tully

$400

Elizabeth Tully

Lili Serfaty

$100

Anonymous

$100

IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

To help minimize the risk of COVID-19, we ask that attendees at CF Foundation events follow these steps:

Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Please be advised certain localities and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you are feeling ill or have been recently exposed to COVID-19.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.

Achievements:

Michael Tully

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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:

To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.

FOR YOUR SAFETY AND THE SAFETY OF OTHERS:

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