Support Keenan in his fight against Cystic Fibrosis by donating or join us walking (or as a virtual walker) in our 16th annual Great Strides walk on Sat May 14, 2022 at 9:30 am - noon for the Cystic Fibrosis Foundation at Austin's Q2 Stadium. Team Keenan's Camp will be enjoying games and a DJ with a short walk, followed by lunch with our Cystic Fibrosis friends and family.
2022 has been a great year for Keenan after his start of the miracle drug Trikafta in 2020! His lung function is above 100%! He has grown a lot and is officially taller than Christy now. While Trikafta is amazing, there are still 10% of the 70,000 worldwide with CF for which no medication is available. We have friends in this 10% and we will keep fighting and raising funds until advanced treatments are available for all with CF!
While Keenan feels amazing, breathing easier, running faster, growing taller, Trikafta is still not a cure. Keenan has been able to back off on some of his breathing treatments when he is well. Keenan takes about 30 pills a day and when sick does 2-3 treatments daily with his vest and 4 inhalers/sprays and 3 nebulizers to keep him healthy. Trikafta allowed him to recover from Flu A this year without post flu pneumonia for the first time ever. His last IV treatment was 6 years ago, and hopefully will be the last IV needed for a long time. Thanks to all your generous donations to the CF Foundation! We are so grateful for the amazing research supported by your donations to the CF Foundation! Join us in helping CF stand for Cure Found for all those with CF!
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. We will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to our Great Strides fundraising campaign today!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help us reach our fundraising goal!
Please support us!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.