Support Keenan in his fight against Cystic Fibrosis by donating or join us walking (or as a virtual walker) in our 15th annual Great Strides walk on Fri May 14, 2021 at 6:30 pm for the Cystic Fibrosis Foundation. We will be doing a socially-distanced, masked 6.5 km (4mile) neighborhood walk in Steiner Ranch, followed by a 65 baskets challenge shooting a basketball at our home with pizza and cake to follow. On Sat morning we will have a car parade to downtown at the Palmer Events Center at 9 am.
2020 was the 65th anniversary of the CF Foundation, started by parents of children with CF. 65 is also a significant number in the CF community as kids with CF call Cystic Fibrosis 65 Roses since it's easier to say.
2021 has been a huge year for Keenan after his start of the miracle drug Trikafta in 2020! His lung function is above 100%! He has grown a lot and is officially Christy's height now. While Trikafta is amazing, there are still 10% of the 70,000 worldwide with CF for which no medication is available. We have friends in this 10% and we will keep fighting and raising funds until advanced treatments are available for all with CF!
While Keenan feels amazing, breathing easier, running faster, growing taller, the Trikafta is still not a cure. Keenan takes about 30 pills a day and does 2-3 treatments daily with his vest and 4 inhalers/sprays and 3 nebulizers to keep him healthy. Intermittently he needs 2 weeks of IV antibiotics to clear frequent bacterial infections. His last IV treatment was 4 1/2 years ago, and hopefully will be the last IV needed for a long time. Thanks to all your generous donations to the CF Foundation! We are so grateful for the amazing research supported by your donations to the CF Foundation! Join us in helping CF stand for Cure Found for all those with CF!
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. We will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to our Great Strides fundraising campaign today!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help us reach our fundraising goal!
Please support us!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.