Our daughter Zoey is four years old and was diagnosed with cystic fibrosis shortly after birth. It's a rare, genetic, life-shortening disease that makes breathing difficult.
We have a goal to find a cure for cystic fibrosis in Zoey's lifetime, and we can't do that without fundraising for new therapies and medication but, ultimately, a cure. Already, the Cystic Fibrosis Foundation is leading the way in the fight against CF, fueling extraordinary medical and scientific progress. Zoey has responded amazingly to these therapies and medications. Overall, she has been doing great and is a super happy child despite the disease.
The life expectancy of CF patients has doubled in the last 30 years. Recently, the life expectancy was revised to 56 years. A significant improvement, but we won't stop until we find a cure!
We walk in Great Strides for Zoey but also for other people who struggle with cystic fibrosis.
Love, Miranda, Jordi, Luca, and Zoey
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
The 5k walk starts at Q2 / Austin FC stadium at 9:30 am on May 4, 2024. Walk with us by joining our team! Just click on the "Join our Team" button. From there, you can donate and join the walk.
But if you can't make it, please consider donating, as it helps find a cure for children (and adults!) with CF worldwide.
By joining our Great Strides team and donating, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.