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I found out at age 36 while trying to conceive that I am a recessive carrier for a strain of Cystic Fibrosis - my husband too. If we wanted a biological child, our “only” route was IVF. Through this process, the majority of the embryos were “non-viable” meaning they either didn’t grow or were positive carriers. The remaining were recessive carriers as we are. The twins while born premature, are healthy and we will educate them on what this means with time.
9 months later, I became pregnant - as I have learned many couples do after an experience with IVF. We spent what felt like eons wondering and worrying and trying to imagine. Tests came back around Christmas and our third boy was deemed a recessive carrier as well.
Though our challenges have been very REAL and tough for us, there are many families that haven’t been as fortunate as we have.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.