Jaclyn Tully

Please support our efforts to find a cure for cystic fibrosis!!

This cause is close to my heart as my daughters Frankie and Cora, my cousin Kaitlyn, and my husband Michael are all impacted by the disease. They endure hours of breathing treatments, hundreds of pills, and a constant risk of lung infections which can lead to hospitalizations. Their digestion is greatly impacted as well; Frankie has a feeding tube to meet her high caloric needs and Cora has needed two major abdominal surgeries to correct harm caused by her disease. While those with CF may "look healthy," there is a battle raging inside the body which demands constant effort to prevent the disease from taking over.

Thankfully, the Cystic Fibrosis Foundation has had immense success pioneering its venture philanthropy model. In the 1950's, CF children were not likely to live long enough to make it to Kindergarten. Now, due to the efforts of the CF Foundation, half of those born with CF are expected to live into their 50's and 60's. While we celebrate these advances and the efforts of those before us, we will not be satisfied until there is a CURE for all those with CF.

This is an exciting time for CF research with the launch of "Path to a Cure," an ambitious research initiative to accelerate treatments for everyone with CF and ultimately deliver a cure. The Foundation intends to allocate a half billion dollars to the effort through 2025 and have already seen an 180% increase in funding for this area of research from 2018.. But, because CF is a rare disease, the CF Foundation gets no government funding and relies solely on private donations to fund research. Your donation today not only helps our girls gain access to improved treatments and a longer life -- it also furthers the Foundation's groundbreaking research which will benefit other genetic diseases and advance medical technology for all.

It's always a little hard to ask, but if you are able to help, please consider a donation to support Frankie and Cora and all those with CF. The daily battle to stay healthy wears us down, but when we can actively be involved in the fight for a cure, it lifts us up! We thank you from the bottom of our hearts for all the love and generosity you show!

Until It's Done!

Jaclyn