Support Keenan in his fight against Cystic Fibrosis by donating or join us walking (or as a virtual walker) in our 18th annual Great Strides walk on Sat May 4, 2024 at 9:30 am - noon for the Cystic Fibrosis Foundation at Austin's Q2 Stadium. Keenan is the featured speaker at the walk and will share his experience living with CF. There will be games, food, a DJ, a short walk, followed by lunch with our friends and family.
2024 has been a struggle for Keenan with CF exacerbations. Overall he has done well after his start of the miracle drug Trikafta in 2020! His lung function is above 100%! He is now 5’9” and lifting weights regularly, so he’s all muscle. While Trikafta is amazing, there are still 10% of the 70,000 worldwide with CF for which no medication is available. We have friends in this 10% and we will keep fighting and raising funds until advanced treatments are available for all with CF!
While Keenan feels amazing, Trikafta is still not a cure. Keenan has been able to back off on some of his breathing treatments when he is well, though Keenan still takes about 30 pills a day. When he’s sick he does 2-3 treatments daily with his vest and 4 inhalers/sprays and 3 nebulizers to keep him healthy. His last IV antibiotic treatment was 8 years ago, and hopefully will be the last IV needed for a long time. Thanks to all your generous donations to the CF Foundation! We are so grateful for the amazing research supported by your donations to the CF Foundation! Join us in helping CF stand for Cure Found for all those with CF!
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. We will not stop striding until all those with cystic fibrosis have a cure. Will you join me? Please consider donating to our Great Strides fundraising campaign today!
Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress towards a cure. Please help us reach our fundraising goal!
Please support us!
Your participation will help us get one step closer to ending this terrible disease. Let’s make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.