As I write to you it still feels like winter, but I know Spring is coming! And that means Great Strides for the Cystic Fibrosis Foundation and Team Alyssa. And even though Alyssa is no longer with us physically, she is definitely here in spirit urging us on to never stop until we find the cure!
There are many of you receiving this letter for the first time because you recently donated to Team Alyssa and CFF in memory of Alyssa. Welcome! We are so happy you are with us.
Great Strides will be virtual again this year. The CFF has designated May 15, 2021, at 11:00AM as a National Walk Day Virtual Event. We will definitely have a Kibler "mini walk" like last year, sometime this Spring or early Summer. We will stride around our block and proudly wear our Team Alyssa green shark shirts. More information will follow.
Unfortunately, Chuck has been ill for the past few months. The lymphoma he got from exposure to Agent Orange in Vietnam has reappeared and he is currently going through aggressive treatment. Please keep him in your thoughts and prayers. He's tough as we all know!
Even though we are virtual again, due to Covid, we still need you to register as walkers and, of course, donate to Team Alyssa! The fight for the cure never ends, until CF = Cure Found!
Last year we raised $30,000+ in honor and memory of our brave girl. Let's keep her wish alive.
In gratitude, with much love to you all,
December 17, 2020
Dear Friends and Supporters of Team Alyssa,
Greetings of the season to you all! We hope you and your families are all safe and well this crazy holiday season. We all look forward to 2021. This is our final Team Alyssa update of 2020. And will be short! I promise.
Since Alyssa's passing almost two months ago, you have raised an incredible amount in her memory to bring her greatest wish to fruition -- to make CF = Cure Found. We can find no words to express our gratitude. We just learned that Alyssa is being awarded the 2020 Central PA CF Star Award for her "unwavering dedication to the Cystic Fibrosis Foundation and Central PA Chapter." The impact she made in the Foundation has created a legacy that will be remembered for years to come. We are incredibly proud of Alyssa and she would have loved receiving this honor. Her influence has been far-reaching and we are still receiving reminders of this every single day.
From the Kibler family to yours, we send love and gratitude and the promise to continue Alyssa's fight for the cure.
Happy Holidays to you all!
Honi and the entire Kibler family xoxo
PS- The current total for Team Alyssa stands at $29,160. In addition, donations came in for the CFF Breath of Life Gala in Alyssa's honor, bringing our grand total to $49,660 ... truly amazing!! The books on 2020 will close very soon, if you still wish to donate for 2020, please do so today. Thank you!
October 28, 2020
Dear Family and Friends of Team Alyssa,
This is the update I never wanted to write. Last Tuesday, October 20, our warrior and team namesake, Alyssa Kibler, lost her lifelong battle with cystic fibrosis. Many of you will know this, but many of our supporters will not have heard this heartbreaking news.
Just as she was fierce and independent in life, so she was in death. She did it her way 100% - in charge and in no pain. We are sad beyond belief, but we are so proud of her.
This is not a fundraising letter, although you can donate make a donation to honor Alyssa, as many of you have already done. (We never say no to finding that cure!)
We will continue Alyssa's fight. Hopefully with the pandemic far behind us, we will gather in May in Hummelstown, and walk as always in her honor and memory. Team Alyssa will live on.
Thank you dear friends, our Team Alyssa family, for your many years of love and support.
There are no words.
We love you all.
Honi and the entire Kibler family xoxo
September 16, 2020
Dear Friends of Team Alyssa,
Good wishes to you all. Sorry it's been so long since my last update. With everything going on in this world I hope you are all staying safe and healthy and loving your family. There's a new Great Strides initiative from the CF Foundation that I want to tell you all about, but first an ...
Alyssa Update: Alyssa was home for over 6 months due to sheer stubbornness and fear of Covid-19. She finally gave in and was readmitted to the hospital 2 1/2 weeks ago. She was put in the ICU this past Saturday as a precaution, but her condition worsened and she had to be placed on a ventilator on Sunday to give her lungs a rest and improve her oxygen exchange. We ask for prayers and want to thank you and your prayer chains for all the awesome efforts you are making. She is showing signs of improvement from the treatment and prayers and the doctors are encouraged. She is still vented and sedated, but comfortable and healing. Please keep praying!
Now to Great Strides- At present our Team Alyssa total for 2020 stands at $11,063, from your generosity and efforts. There's a new challenge this weekend, Sept 18-20, from the CF Foundation, called 65 Hours for 65 Roses! It starts Friday at 7am. As your Team Leader, I've accepted the challenge to help the chapter raise $6500. The Kiblers are pledging an additional $200 to get us started. We understand many of you already donated in the Spring. We appreciate any additional gifts you can make. Click here to make your donation.
Again, thank you from the bottom of our hearts for your generosity and prayers. I will keep you updated on the progress of our feisty fighter! Please contact me if you have any questions and know that we love you all!
Happy New Year to all who observe.
June 2, 2020
Dear Friends of Team Alyssa,
It's JUNE! I can't believe it. I'm hoping you and your families are all safe and well. I just have a few thoughts and reminders for this week: We have currently raised $6,622 towards our team goal of $20,000 and have registered around 20 walkers. Friday, 6/5 is the national virtual celebration of the CFF and Great Strides. RSVP to watch online here. Also on Friday, 6/5 at 6:00 PM, join us for a mini-walk around the Kibler's block, at 120 Woodridge Drive in Harrisburg. All are welcome. Don your green Team Alyssa shirt ... and your mask ... and we will walk 6 feet apart to support the cause. Alyssa, who is still at home, will be sitting in our driveway to receive all our love and support. She is very excited about this event. If you can't walk with us, walk around your own neighborhood and send us pictures!
There's no deadline on donations! Team Alyssa 2020 is open until December 31st ... Click here to donate!
Thank you, thank you to everyone who has generously donated already. Our cause continues despite Covid-19, social unrest, and the recent changes in all of our lives.
We love you all! I'll keep you posted on our progress and our girl throughout the summer.
Honi xoxo 717-608-0946
PS- If you don't have a green shirt, I have some extras.
Dear Friends of Team Alyssa,
I hope this finds you all safe and well. This will be short, I promise!
First, thank you so much for all of your generous donations and registering to "walk!" We currently have 18 registered team members, virtual of course, and have raised $4,896. Many of you enjoyed the virtual Central PA Pep Rally on May 16. Thank you for watching and wearing your Team Alyssa shirts for a walk in your neighborhoods. We plan to do the same on June 5, to celebrate the CFF's 65 years of caring and fundraising.
Click here to find out more.
And, thank you all who sent pictures in your shark shirts. These are great and brought us so much enjoyment. See if you can find the Kiblers in the collage. More pictures will be shared soon!
And, it's not too late to:
Donate to Team Alyssa
Send us pictures in your Team Alyssa t-shirts (text to Alyssa- 717-497-1501 or Honi- 717-608-0946)
This has been a difficult year for our fundraising efforts. But, because of you all, we are doing it!!! I just miss all of your hugs and smiling faces.
Questions? Call, email, or text me.
As always, I love and appreciate you all.
PS- Alyssa Update: She is still home! And determined to stay here!
February 22, 2020
Dear Friends and Family of Team Alyssa,
Hi Everybody! I hope your holidays were glorious! I apologize for being so absent since my Thanksgiving letter. In mid-December, I had yet another fall, broke my pelvis and tailbone, and spent almost a month in the hospital and rehab. I have been home healing for the past 6 weeks. Alyssa was in the hospital for 10 weeks and has had a really rough go. She is home now, we are all thrilled to have her back where she belongs and looking forward to spring.
Spring, as you all know, brings the Hummelstown Great Strides and the walk for Team Alyssa and CF. The date this year is Sunday, May 17, registration begins at noon, and the walk will start at 1:00 PM, at Schaffner Park in Hummelstown. Last year, we had 50+ walkers and raised almost $20,000! Huge goals to match and exceed in 2020! But, this team is awesome, and I know we can do it!
Join us by registering as a team member to walk and donate to Team Alyssa. Last year, brought the miracle drug, Trikafta, to benefit 90% of people with cystic fibrosis. There are many more miracles in the research pipeline, so our fundraising is more important than ever.
Thank you all, as always, you are THE BEST!
Love to all,
Dear Family and Friends of Team Alyssa,
It is the season of gratitude and thanksgiving. Rarely in my life have I felt as grateful as I do today, as I write to you. While we cannot use the word cure - yet - we can definitely use the word MIRACLE! The FDA has recently approved a miracle drug, named, Trikafta, which will benefit 90% of patients with cystic fibrosis. Each of you is responsible for this miracle. Because of this new drug, younger patients and those born with cystic fibrosis today will not suffer ill effects from this horrific disease and should live their lives symptom-free. Patients who have been in the trials have shown remarkable improvement in lung function, weight gain, and overall quality of life. Even patients with severe disease, like Alyssa, have shown positive results from this drug. Alyssa is not taking Trikafta yet, but we are eagerly waiting for her to start. So, thank you all for being part of this miracle!
Our Great Strides team in 2019 had the BEST YEAR EVER!! We raised just under $20,000, because of your participation and generosity. Nationally, Great Strides has raised $36.4 million so far this year for cystic fibrosis research and patient care. The Cystic Fibrosis Foundation has pledged to find a treatment for the remaining 10% of patients who cannot benefit from Trikafta. They will NEVER STOP and NEITHER CAN WE until CF is a thing of the past!!
So this Thanksgiving, as we sit around our bountiful tables with our loved ones, please know that our prayers have been answered this past year. We still have more work to do, but a miracle is a miracle, and we are truly blessed! Our page is up and running for Team Alyssa for the 2020 Great Strides. Please feel free to register to walk, donate, or volunteer. We need you all, we love you, and we thank you.
I will be sending you more information soon.
Have a joyous Thanksgiving!
November 15, 2019
Team Alyssa Update and Great Strides Wrap-up!
Dear Friends and Family,
We are gearing up for Great Strides 2020!! In 2019, we had a beautiful day, about 60 walkers on Team Alyssa alone, and raised more than ever before. To date, Team Alyssa's total is $19,600+ and additional donations are still coming in! Alyssa got discharged from Hershey Medical Center mere hours before the walk and was in attendance as always. (We want to know who she bribed to get sprung, but she won't tell us.) A HUGE THANK YOU TO EVERYONE OF YOU WHO WALKED, DONATED, GAVE MORAL SUPPORT, and TRAVELED FAR DISTANCES to be there. We appreciate it more than words can express.
So what's next? We keep going to raise funds for that vital research to find a cure. This website stays open through 2019, so donations are welcomed at any point.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.