Hi! I’m Jenn Pontz Miller, and my husband John and I continue to drive awareness and fundraising for the Cystic Fibrosis Foundation.
First, I want to say THANK YOU! Thank you for helping the J Team raise over $365,000 to help find a cure for Cystic Fibrosis over the past 10 years. This year, we will walk on Saturday May 18th at Lancaster Great Strides to continue our mission.
You may know that our boys, Jackson and Jacob, both have Cystic Fibrosis. CF is a progressive, genetic disease that affects the lungs, pancreas, and other organs. And there is no cure.
In the past Cystic Fibrosis was described as a terminal disease, but through major advances in recent years, these kids are living much longer and relatively healthy lives well into adulthood. There are nearly 40,000 people living with CF in the US, up from 30,000 in 2012.
For the first time ever, more than 50% of the CF population is over 18 yrs of age! And the median life expectancy for someone born today with Cystic Fibrosis has climbed to 56 - up from 30 when my boys were diagnosed. Because of you, people with Cystic Fibrosis are living longer and there is more hope for the future than ever before.
Please join us Saturday, May 18, 2024 at Overlook Park for Great Strides! It is a fun, family event and we would love to see you there! And if you are able to donate, we greatly appreciate it! No amount is too big or too small – every cent gets us closer to a cure!
YOU can help us make CF stand for Cure Found! Together, we ARE adding tomorrows to the lives of all people living with CF!
Thank you for your support!!!!!
The J Team -Jenn, John, Jackson, and Jacob Miller
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.