THANK YOU to all our supporters! We are so pleased to share our journey with others and to raise awareness and support for the Cystic Fibrosis Foundation. Our goal is to spread our joy and hope to others, and a reminder that no one fights alone!
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Thank you from our family to yours!
- John, Rebecca, Alex and Emily
What is Cystic Fibrosis?
Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. In people with CF, genetic mutations make it difficult to move chloride - a component of salt - to cell surfaces. Without chloride to attract water to the cell surface, mucus in organs become thick and sticky. In the lungs, the mucus clogs the airways and traps germs and bacteria, leading to infections, inflammation, respiratory failure and other complications. For this reason, avoiding germs is a top concern for people with CF. Additionally, many medications and treatments are aimed at thinning or reducing the mucous buildup.
Our Family's CF Journey
We are thankful that Emily's disease only affects her lungs. Our daily lives have been adjusted to add in nebulizers, inhalers, chest percussion therapy, and constant monitoring for any new illnesses. We are hopeful for future therapies and medications, and with your support, the CF Foundation and their partners will be able to discover new advacements that can help prolong the lives of those living with CF.
Join our Team!
To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: