"Hi folks! We all know why we're here, and as much as I hate the fact that Kahner has this chronic disease, I will not let it get the best of him! Kahner was diagnosed on October 25th 2012, just 22 days after he was born. At 23 weeks pregnant at a routine ultrasound appointment, doctors found what they called "echogenic bowel." To make this long story shorter, Kahner was rushed to GMC due to no bowel movement in the first 24 hours and an increasingly large abdomen. So, at 2 days old he had his first surgery. Unsure of what they would find, the surgeon didn't leave us with much hope that Kahner would survive. Kahner had a volvulus (his bowel had made a knot of itself, and the knot part had died). 8 inches of his small intestine was removed. On November 6th, 2012, Kahner had his second surgery to reconnect the bowel that they had cut in two and had made a jejunostomy with. It was a success! We spent 7 weeks in the NICU, and on November 21st, Kahner came home for the first time!- This all was due to Kahner's CF and the thick secretions that plugged up Kahner's intestines, making it impossible for Kahner to have a bowel movement. It's already been quite a journey for us! And although at times we will struggle, we will get through anything we have to. There is no other option. We will win this battle!
We are fighting and will continue to fight for Kahner's life everyday, and this walk is one way of doing my part in the fight to cure Cystic Fibrosis! Come walk with us, and support our beautiful baby boy Kahner. The support of our family and friends would mean the world to all of us! This will be our second year doing the Great Strides walk in Lock Haven, and we're excited to see the impact we'll have in 2015!"- Amber
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.