Hi! My name is Thea and battling cystic fibrosis is all I know. I'm the team leader of The Pyle Pile. Cystic fibrosis is a genetic disease that causes my body to produce thick, sticky mucus in my lungs and pancreas. There is currently no cure. To control the disease, I spend hours a day doing breathing treatments and airway clearance therapy in my Monarch Vest. I also have CF-related diabetes due to issues with my pancreas and depend on numerous insulin shots throughout my day. I take digestive enzymes to breakdown my food, along with various antibiotics and vitamins. I also have a younger brother fighting CF.
There are approximately 30,000 Americans living with cystic fibrosis. Our team walks because we want to see CF stand for "Cure Found." The funds raised through Great Strides support the research and development of new new medicines for all CF patients. In 2015, I started taking Orkambi and saw my lung function improve and remain stable. In 2019, I started taking Symdeko and my lung function continued to improve. In 2020, I made another switch to Trikafta and experienced continued imporvement in my lungs and my overall health. My lungs are currently they healthiest they have been in over 10 years. These medications benefits nearly half of the CF patients in the US and would not be available without the continued work of the CF Foundation and the generous donations from people like you!
Great strides have been made towards a cure, but we aren't there yet. Too many lives are cut short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my Great Strides fundraising campaign today!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.