In early 2013, we learned our grandsons had a chronic, life-shortening illness……Cystic Fibrosis. Cystic Fibrosis is an inherited disease that affects the lungs and digestive system. Jacob was diagnosed through the newborn screening at birth. Jackson's newborn screen at birth was "normal" - which was obviously incorrect since CF is not something that can be "caught" - you are born with it. Jackson, who was 2 1/2 at the time, was re-tested and a month later it was confirmed he also had CF. Learning of their condition was difficult, but we all quickly adjusted to our new roles in caring for the kids.
At first glance, you would not know there was anything wrong with the boys. Jackson (now 8) has always been a ball of energy, and Jacob, (6) is following right along in his footsteps! But now in addition to all the typical things kids do, they each take up to 10 different medications, and receive 2-3 respiratory treatments totaling 60 minutes a day. And that is just when they are well - the medications and treatments increase when they are sick. Many of the medicines they take to survive are available today due to the vital research and funding provided by the Cystic Fibrosis Foundation. And there are new, exciting drugs currently in trial - medications that can improve not only their quality of life, but their life expectancy (currently 35 years).
Please consider making a donation and supporting us when we walk in the local Great Strides event on Saturday, May 18th, 2019. You’ll feel confident in knowing that your generous gift will be used efficiently and effectively – approximately 90% of every dollar raised goes to support vital CF research, as well as medical and educational programs. Plus, your gift is tax-deductible.
There are approximately 30,000 Americans living with cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Please help us make CF stand for Cure Found!