Conlee was born with Cystic Fibrosis (CF), a chronic, life-shortening disease that affects mainly the lungs and digestive system. He was diagnosed at 2 weeks of age via the newborn screen. He takes roughly 25 pills a day and spends 1.5-2.5 hours doing chest therapy and aerosol treatments to clear his lungs of the thick, sticky mucus his body makes.
Because people with CF have trouble fighting off dangerous bacteria that can cause lung damage, he will also be on various antibiotics (oral, inhaled, and IV) throughout his life to fight off lung infections. His life will be cut terribly short if there is no cure found.
Last year, a new medicine was approved for adults with Conlee's CF-causing muitations that helps target the underlying cause of CF rather than just treating symptoms. This medicine is changing the lives of people who never expected they'd see something like this in their lifetime. This is a HUGE deal and all due to people like you showing your support and donating to our cause. There is still so much work to be done to save the lives of people like Conlee and we need your help to do it. Please join our team and consider making a small donation to help us add tomorrows with our amazing fighter, Conlee!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.