At ten days old, our daughter Melody was diagnosed with a life shortening and threatening genetic disease called Cystic Fibrosis. This disease causes the buildup of mucus in the lungs, pancreas and other organs. The buildup of mucus creates clogged airways, which trap bacteria leading to infections, extensive lung damage and eventually, respiratory failure. In addition, with the pancreas, it prevents the natural production of enzymes that allow the body to break down food and absorb vital nutrients.
In order to fight this disease, Melody does 1-2 hours a day of breathing treatments and other inhaled medications. In addition, Melody also takes 18 pills a day, 126 pills a week and over 504 pills a month! All of these treatments and medicines help our little girl reduce the amount of mucus within her lungs allowing for easier breathing as well as slowing down future damage to organs and tissues.
Melody along with 70,000 worldwide need your help and support to cure Cystic Fibrosis. All profits from Melody's Mission will be donated to The Cystic Fibrosis Foundation, where proceeds go directly towards research and medications for this disease. Together we will make CF stand for Cure Found!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.