As we enter 2020 we are so excited with the recent announcement of the CF treatment, Trikafta. This new medication will be LIFE CHANGING for so many with CF and for the caregivers !! In the last two years Trikafta and Orkambi have been made possible because of donations to Cystic Fibrosis. It's because of YOU that the Cystic Fibrosis world is changing for the better. Parker has been taking Orkambi for quite some time and it has been instrumental in helping him to gain and retain weight. He is the perfect candidate for Trikafta. The hope for many including Parker is that Trikafta will not only give longer healthier life, but will reduce the amount of current treatments. We are so excited and hope you are too.
We have had one of the largest and highest fundraising teams each year in support of Great Strides. Let's do it again this year !!! We are forever grateful for our friends and family who continuously support Team Parker... YOU REALLY DO MAKE A DIFFERENCE !!!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.