Cystic fibrosis is a life-threatening, progressive and chronic genetic disease that causes persistent lung infections and progressively limits the ability to breathe. It often leads to double lung transplants. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas, liver and other organs. My sons Colton (4) and Jase (10 months) have to take enzymes before every feeding in order to digest their food. They take up to 21 pills a day. They undergo throat swabs to check for infection, take inhaled antibiotics, do multiple breathing treatments a day to open up airways and then have Chest Physiotherapy. All of that is done when they are “healthy”. If they get a common cold their breathing and chest physiotherapy treatments have to double and additional medication is subscribed.
Moments after Colton was diagnosed our life took a drastic change and we vowed to do anything and everything we possibly could do to play a part in finding a cure for CF. On May 3rd 2020, I’m leading a team (Hunting for a Cure) in the Great Strides walk in Columbus,OH, to raise money for the Cystic Fibrosis Foundation. The CFF doesn’t receive any government funding, leaving it up to personal donations from individuals and gracious businesses such as your own to help assist us in our efforts to find a cure for our sons and the 70,000 other individuals suffering from Cystic Fibrosis. We would greatly appreciate it if you would be able to help us meet our team fundraising goal by sponsoring us with a donation!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.