Xander is an energetic fun loving three-year-old living with Cystic Fibrosis. Although he doesn't quite understand what it means to be living with Cystic Fibrosis yet, the treatments and medications he has on a daily basis are just his normal he has grown accustomed to. If you have some time to kill Xander would love talking to you about it and probably so much more as he loves communicating with friends and family constantly!
Xander and his family have been fortunate from the years of donations and research breakthroughs in CF medication and therapies to allow Xander to stay as healthy as possible in these first few years of life before his families CF story even began. We are hopeful through continued research and support Xander and others will live full and happy lives! We are walking for Xander but beyond that we are also walking for all the other CF individuals and families affected by the disease.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.