Hello, our son's name is Xander, and he is an energetic fun loving two-and-a-half-year-old living with Cystic Fibrosis. Although he doesn't quite understand what it means to be living with Cystic Fibrosis yet, the treatments and medications he has on a daily basis are just his normal he has grown accustomed to.
Xander and our family have been fortunate from the years of donations and research breakthroughs in CF medication and therapies to allow Xander to stay as healthy as possible in these first few years of life before our families CF story even began. We are hopeful through continued research and support Xander will live a full and happy life! We are walking for Xander but beyond that we are also walking for all the other CF individuals and families affected by the disease.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for every last one of them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.