Ruth Lapp

This year will mark the 14th year we have participated in the Great Strides fundraising event. During this time there has been immense progress in extending the lives of many CF patients. However, our granddaughter Lilly has  a rare form of CF  which has not  benefited from these life extending discoveries. We believe that in the next few years a treatment will be found. Then the daily regimen of drugs, breathing treatments and frequent  hospital checkups  will be a thing of the past. 

Lilly is in 9th grade and continues to excel at the highest academic level. This year she is 15 an age most CF patients  never reached forty years ago. Thanks to many years of fundraising and research CF patients life expectancy has quadrupled. As you will see in the video Kathy is a tireless worker to make our dream possible.

There are approximately 30,000 Americans living with cystic fibrosis today. Will you join us and support our fundraising goal? 

We will not stop striding until all those with cystic fibrosis have a cure.

 To learn more about Lilly and CF watch the video made by her mother.

Thankfully 

Ruth and Hank Lapp