Charlie and Georgia have had been on Trikafta for about 9 months! It is has helped tremendously with their cystic fibrosis symptoms. This would not have been possible without the fundraising through CFF to research their conditions and medications to help them.
Trikafta has not treated them equally though. Charlie has taken to it very well and has been slowly coming off other medications to treat symptoms he no longer has. Georgia has been coming along at a much slower pace but we are still getting somewhere!
We had a big set back this year when Georgia was hospitalized during our special trip to Disney World to meet Anna and Elsa. We were in the hospital for 3 days in Orlando for a bowel obstruction, but ended up being able to do everything we planned and having the best trip!
We were very thankful that everything turned out ok, but it was a wake up call that we are not out of the woods with CF complications just because of Trikafta.
We would very much appreciate your support of the Cystic Fibrosis Foundation to continue CF research to find a cure for Charlie and Georgia!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.