My Great Strides Story
My daughter was diagnosed with Cystic Fibrosis when she was barely two weeks old.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and their disease can lead to serious health issues.
As a first time parent, her diagnosis was scary and full of unknowns, but seeing her grow and thrive every day in the face of CF has been inspiring and has filled us with hope. Her CF mutations are more uncommon and are not impacted by the new treatments for many CF patients, but that has not slowed her down in the slightest.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them, including my daughter. We must keep going.
The Great Strides event happens to fall 2 days after her first birthday. I can’t think of a better gift to give my little girl than helping make progress in finding a cure so that she can live a long and healthy life.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.