Kristina Handshy

Join our team and help add tomorrows!

Conlee was born with Cystic Fibrosis (CF), a chronic, life-shortening disease that affects many parts of the body such as the lungs, sinuses, and digestive system. He was diagnosed at 2 weeks of age to our complete surprise. Since then, he has spent every day of his life taking handfuls of pills and doing treatments 2-4 times per day to clear his lungs. 

In July of 2021, a new medicine for Conlee's CF mutations got approved for his age.  This medicine is called Trikafta and it is able to treat the underlying cause of CF rather than treating the symptoms which basically means it helps to thin the thick mucus in his body which helps makes his body function much better. It helps his sinuses, lungs, and even his digestive tract work better! This medication is available because of the CF Foundation and generous donors like you. 

The problem is that although this medicine is an AMAZING stepping stone for the CF community, there are still many patients who are not able to take this medication because it does not work on their CF-causing mutations. It also is not a cure so even those who are eligible still have to work hard everyday to stay healthy. We will not stop this fight until everyone has a medication to help them and ultimately, one day, a cure so that nobody else has to go through all of this! 

Please consider donating to our fundraiser this year to help us make CF stand for CURE FOUND!!