Join Jessica's Mafia For A Cure to help blow CF away!!!! My friends and family fight right along side me in every day life and in helping fundraise to find new treatments and a cure. We have been doing the Great Strides Walk since the begining and we look forward to it each year. I was born with Cystic Fibrosis and diagnosed at age 3. Most people if you were to ask them, they have no idea what CF is. Cystic Fibrosis is a life threatening genetic lung and digestive disease. In the United States alone about 30,000 children and adults suffer from this disease (70,000 worldwide) and about 1,000 new cases are diagnosed each year. CF is caused by a defective gene and its protein product that causes unusually thick and sticky mucus. This mucus clogs up the lungs and leads to life threatening lung infections. It obstructs the pancreas natural enzymes that keep it from breaking down and absorbing food properly. Symptoms that a CF patient would have would include salty tasting skin, persistent cough a lot of times with phlegm, frequent lung infections, wheezing and shortness of breath, poor growth/weight gain regardless of appetite and frequent greasy/bulky stools or trouble with bowel movement. That is just the basic breakdown of what Cystic Fibrosis is and what comes along with having this disease. But it goes much deeper and more complicated than that on every level. We need your help in making that progress to a CURE and we are so close. In 2012 the first drug was approved that treats the underlying cause of CF, that's GREAT NEWS! Today I am 37yrs old and going strong thanks to all the breakthroughs we have had in medicine and treatments. I am on the newest breakthrough that was approved in 2019 called Trikafta!! It has been life changing and that would be an understatement! No matter how much progress is made we still lose countless young lives every day to this horrible disease.
BECAUSE OF THE EFFORTS OF THE CF FOUNDATION AND EVERYDAY PEOPLE LIKE YOU WHO DONATE TO HELP FUND RESEARCH FOR NEW TREATMENTS, EDUCATION, AND CF CARE TO NAME A FEW. CF PATIENTS LIKE MYSELF AND OTHERS AROUND THE NATION GET TO EXPERIENCE THOSE TOMORROWS WE WALK FOR!!!! THIS YEAR JESSICA'S MAFIA FOR A CURE IS BACK CONTINUING TO HELP BLOW CF AWAY! WE ALWAYS TRY TO GO BIGGER AND BETTER EVERY YEAR. I ENCOURAGE YOU TO PLEASE SHARE THIS LINK TO MY PAGE WITH OTHERS TO HELP GET DONATIONS. I THANK YOU VERY MUCH FROM THE BOTTOM OF EVERY CF PATIENTS HEART <3 REMEMBER TO ALWAYS LIVE*LAUGH*LOVE :) JOIN ME IN THE FIGHT!!!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.