In 2015, Henry was prenatally diagnosed with cystic fibrosis- a potentially life-threatening genetic disease affecting mainly the lungs and pancreas. It threw us into a whirlwind of unknowns and scary google searches, which we will never forget. But, on May 30, 2016, Henry was born and we met the most perfect and squishy baby boy. Although he has had a fairly healthy 4.5 years of life, there have been challenging days because of CF.
Every day, to stay as healthy as possible, Henry does 2 thirty-minute vest and nebulizer treatments every day, takes enzymes before meals and snacks, and takes a variety of vitamins- all to keep his lungs clear and his body growing and thriving. In December 2017 he began a miracle drug which is expected to attack CF at its core, improving his life overall. Were hoping that he will soon start Trikafta- which has even better outcomes. These advances in treatment and medicine would not be possible if it weren’t for those of you that have helped to support the CF Foundation- through your donations and by spreading awareness.
Henry is one of the strongest, sweetest, and funniest little boys we know (biased, but still). We continue to raise awareness and funds for the CF Foundation so that one day our little boy will have no restrictions in life. We also wish to support a community which has given us more love than we could ever give back. We need a cure for this awful disease that has taken the lives of way too many.
Please consider walking, donating, or simply sharing our cause with the world! Henry’s Herd has raised around $35,000 since 2016- all for research for a cure. We are grateful beyond words for your support thus far; let’s not stop until a cure is found.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.