My neice Aurora is 11 years old. She was born with Cystic Fibrosis. Before she was born, I had never heard of Cystic Fibrosis. When my sister told me that she was diagonised with CF, I had no idea what it meant or what to expect. Now 9 years later, I know so much about Cycstic Fibrois. I know that it is a life shorting disease. I know that it makes Aurora have to be more careful than she should have to be at such a young and carefree age. I know that it makes my sister & Jeff spend much of their day focused on what treatment, enzyme, healthy foods and supplements Aurora needs next. I know it has brought much worry to our entire family....
But I also know that Cystic Fibrosis has made us all stronger! We are committed to helping find a cure for this awful disease! We will not stop until we help make CF stand for CURE FOUND!
Each year we come together to walk in the Annapolis Great Strides walk. This year the walk is Saturday, June 6th at 11am at the Navy Stadium. We walk to raise extremely important money for the Cystic Fibrosis Foundation. We also walk to support Aurora, Vanessa and Jeff!! There isn't a day that goes by that I don't think about and pray for Aurora, and this walk is our way of showing them how much we want to help support them! We will never be able to walk in their shoes for a day or week, to experience the constant stress and worry, but we can walk FOR THEM on this one day of the year to show OUR SUPPORT!!
PLEASE JOIN ME IN WALKING WITH US THIS YEAR! AND IN DONATING ANY AMOUNT YOU CAN. EVERY DOLLAR COUNTS AND IS SO VERY APPRECIATED!! Thank you!!
What is Cystic Fibrosis? CF is an inherited, life-threatening disease with no cure YET. People with CF have two copies of a defective gene that causes the body to produce abnormally thick, sticky mucus, which clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty with absorbing nutrients. In 1955 people born with CF were not expected to live long enough to attend elementary school. Today the average life expectancy for people with CF is 44. This is extraordinary progress BUT IT IS NOT ENOUGH! And it is NOT the reality we expect for our Aurora, please help us change these statistics!
Please support me! Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.