In 2015, Henry was prenatally diagnosed with cystic fibrosis- a potentially life-threatening genetic disease affecting mainly the lungs and pancreas. It threw us into a whirlwind of unknowns and scary google searches, which we will never forget. But, on May 30, 2016, Henry was born and we met the most perfect and squishy baby boy. Although he has had a fairly healthy 2.5 years of life, there have been challenging days because of CF.
Every day, to stay as healthy as possible, Henry does 2 thirty-minute vest treatments, takes enzymes before meals and snacks, and takes a variety of vitamins- all to keep his lungs clear and his body growing and thriving. In December 2017 he began a miracle drug which is expected to attack CF at its core, improving his life overall. These advances in treatment and medicine would not be possible if it weren’t for those of you that have helped to support the CF Foundation- through your donations and by spreading awareness.
Henry is one of the strongest, sweetest, and funniest little boys we know (biased, but still). We continue to raise awareness and funds for the CF Foundation so that one day our little boy will have no restrictions in life. We also wish to support a community which has given us more love than we could ever give back. We need a cure for this awful disease that has taken the lives of way too many.
Please consider walking, donating, or simply sharing our cause with the world! Henry’s Herd has raised around $30,000 since 2016- all for research for a cure. We are grateful beyond words for your support thus far; let’s not stop until a cure is found.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.