Cam's Salty Crew!

Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal! 

Our Great Strides Story

Most of you who know Camden, already know she was diagnosed with Cystic Fibrosis at just 10 days old.✨

We are entirely grateful to John’s Hopkins Cystic Fibrosis Center and the fact we are only a 22 minute drive away from there is a blessing. This is where she gets her most important care, and monthly clinic visits. All of the doctors love her holiday outfits and greet her like family when they walk into the room.

What does this look like everyday? Camden has been taking medicine (enzymes) with every feed since her diagnosis day because cf makes her pancreatic insufficient. Breathing treatments for over an hour daily 2X a day, and not to mention all of the other antibiotics, vitamins, daily physical therapy, and hugs she needs! A normal cold for some, could turn into a quick trip to the hospital if we’re not ahead of it. Luckily, watching Ms.Rachel gets us through most neb treatments. This last year on Orkambi has been a blessing and she will start Trikafta in a few short months. Both medicines are because of all the research done from foundations like this one! We are blessed. ❤

✨Camden is by far, the strongest, bravest little girl I’ll ever know! We love her so much!

You know what’s the worst thing about having a child with Cystic Fibrosis? Knowing there’s no cure. Only modulators to help some of the symptoms. We need a cure!! If not I’m my lifetime, I pray to God, in hers!

Please join us in walking to support Camden in the Baltimore Great Strides: Cystic Fibrosis Foundation Walk!

Thank you so reading, thank you for being part of our journey, and most importantly,
thank you for loving and supporting our Cystic Fibrosis Warrior, Camden!

With love, Shannon and Josh
(Cam’s Salty Crew)