Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
Our Great Strides Story
Team Roaring with Rory is back! 2023 is here which means I am beginning a new campaign to raise money for the Cystic Fibrosis Foundation.
Many of you know and love Rory. Many of you know that Rory has Cystic Fibrosis. Many of you know that he is healthy, rambunctious, an animal lover, intelligent, witty, and down right hilarious.
What you might not know is that every day he does 2 - 30 minute vest treatments and takes over 25 enzyme capsules a day to digest his fats properly. He has a team of the most amazing doctors, nurses, physical therapists, social workers, and pharmacists at Johns Hopkins. He visits with them and has clinic appointments quarterly that can be hours long. He has to get annual lab work and chest X-rays. All of this is a lot, but it is our normal.
I will fundraise, call senators, and spread the word about CF until CF means Cure Found. I want Rory to continue to be as healthy as he is now for years and years and years!! With the help of fundraising for the Cystic Fibrosis Foundation, we are on the right path…a path to a cure!
On May 11, 2023 Great Strides Baltimore will take place. We will finally be able to join in on the event! I would love for you to register to be part of our team to walk and fundraise beside us, be in our corner and donate what you can, or simply spread the word about CF and all the greatness that the Cystic Fibrosis Foundation does for this small but mighty community of fighters and their families!
Until it’s done
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.