Caitlin's Crew and the Breslin family are, once again, back to work at taking on the fight to find a cure for Cystic Fibrosis! We are very excited that CF Family teams will be gathering to work together at a Great Strides walk site in our efforts to raise funds for vital CF research. For the first time in over two years, our family team, and many others, will be walking in person once again.
Cystic fibrosis is a devastating genetic disease that still affects approximately 30,000 children and young adults in the United States. Our daughter, Caitlin, as you know, has CF and is now living in Perry Hall, MD and is busy with the next chapter in her life as a recent mother of a miracle Baby, her one year old son Liam, born just before Christmas 2020. She's a young career professional and, her relative health is a tribute to each and every one of you who have given to this cause in the past. I thought I would share with you a message she is sharing this year in her efforts to raise funds to fight CF. This is why we keep fighting...
"Thank you to everyone for your continued support year after year. My family has been fundraising for CF for as long as I can remember and the research that has been done in my lifetime is absolutely INCREDIBLE. The fundraising dollars given by you have truly kept me alive. Not only am I alive but because of your fundraising dollars I am LIVING a full life. I was able to go away to college, get a full time job, get married. All these things were just dreams that I potentially thought wouldn't have become a reality but because of your caring they have come true!
In December 2019 I started taking a life changing therapeutic called "Trikafta". Trikafta is an incredible drug that in clinical trials had proven to improve lung function by 10% and higher! In my experience so far with Trikafta it has brought me so many blessings. I now have a dry cough for the first time in YEARS, I no longer spit up mucus on a daily basis and because of that my lung function has improved 38%! If you've ever been around a CFer you know how wet our coughs are and how much mucus we have in our lungs so this is HUGE, and life changing! I feel like I can REALLY breathe for the first time in my life. The biggest blessing Trikafta was able to give me happened on December 20, 2020. It made me healthy enough to get pregnant and welcome a sweet baby boy, my son Liam, into this world! So for that I thank you because your donations made me a mom!!!
We are so blessed and I am so grateful. We are getting closer to a cure every single day because of all the donations made but we are not there yet! Trikafta is absolutely amazing but it is NOT a cure. It also only works for certain mutations meaning there are 10% of the CF community that don't have a drug like Trikafta to slow the progression of the disease so we need to keep fighting! Please consider donating to continue the fight for CF to stand for Cure Found!"
Our dream is that one day Caitlin will no longer have to spend anytime doing the treatments that give her breath, and extra days. Drugs, like Trikafta, and therapeutic advances that have been achieved since her birth have been miraculous and are the direct result of the generosity of our friends and family who have joined the Crew in the past. But, we want to find the cure!! We want CF to stand for CURE FOUND! We will keep fighting until it's done!
This year, Caitlin and the Breslin Family are walking in our local Great Strides walk on May 7th at our home in Hagerstown and we, once again, need your help to meet our fundraising goal. Also, we are asking our National team friends and family who traditionally walk in sites in Annapolis, MD, Philadelphia, PA, New Orleans, LA, Jacksonville, FL and Durham, NC to join our efforts by participatng in their Chapter's virtual events. Last year, we raised over $35,000 in this overall team effort so we have a real challenge to beat this amount!!!
If you can support us for the walk, your generous gift will be used to help support the Foundation's mission of finding a cure and improving the lives of those with CF. And, your gift is 100 percent tax deductible.
Making a donation is easy and secure. Just click the link below that says, "Click here to visit my personal page" to make a donation that will support our team. Any amount you can donate is greatly appreciated. If you wish to send a check instead, please make it out to "CF Foundation Great Strides" and mail in C/O Hugh Breslin, 12916 Hawkins Circle, Hagerstown, MD 21742
Thank you for supporting Caitlin's Crew and our family! Together, we can make a difference and "add tomorrows" to the lives of those with CF. Until it's done!!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.