Tori Ruark

Team Roaring with Rory is back! 2024 is here which means I am beginning a new campaign to raise money for the Cystic Fibrosis Foundation. 

Many of you know and love Rory. Many of you know that Rory has Cystic Fibrosis. Many of you know that he is healthy, rambunctious, an animal lover, intelligent, witty, and down right hilarious. 

What you might not know is that every day he does 2 - 30 minute vest treatments and takes over 25 enzyme capsules a day to digest his fats properly. He has a team of the most amazing doctors, nurses, physical therapists, social workers, and pharmacists at Johns Hopkins. He visits with them and has clinic appointments quarterly that can be hours long. He has to get annual lab work and chest X-rays. All of this is a lot, but it is our normal. 

My goal in life is to be a good mom to my babies. I will fundraise, call senators, and spread the word about CF until CF means Cure Found. I want Rory to continue to be as healthy as he is now for years and years and years!! With the help of fundraising for the Cystic Fibrosis Foundation, we are on the right path…a path to a cure! 

On May 9, 2024 Great Strides Baltimore will take place. We will finally be able to join in on the event! I would love for you to register to be part of our team to walk and fundraise beside us, be in our corner and donate what you can, or simply spread the word about CF and all the greatness that the Cystic Fibrosis Foundation does for this small but mighty community of fighters and their families! 

If you would like to join Team Roaring with Rory I’ll put the link in comments! 

Until it’s done