All friends and relatives,
The following is an update on my niece Catilin. In 2022, Catie and Tom had another miracle baby, Luci Alice. Because of donations from people like you, she has been able to achieve a dream she has had since a child, a dream others may consider common place. Never did she believe she would live as long as she has, and during those years, children were an impossibility. Today, due to advances made by the CF foundation, especially the miracle drug Trikaftra, her dreams have come true and Liam and Luci exist. Thank you in advance for enabling this miracle. Can you continue ?
You see, not all the advances cover everyone who has this disease. Approximately 10% of individuals have mutations which are, so far, out of the scope of science. Real progress has been made but we cannot forget the unaffected individuals as we celebrate for others.
Thank you to all family, friends, and strangers who have donated to the fight against CF thorough out the years. We need to continue the fight until there is a cure for all.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
Please see link included link to support other's dreams.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.