Hi, I have cystic fibrosis (CF), a genetic disease that affects the lung and digestive system, and need your help! Although the last year was full of challenges due to Covid, I feel fortunate to be alive (and fully vaccinated!) and feeling as healthy as ever due to Trikafta, an incredible drug that I started taking early last year. It's a not a cure - I still have to take around 15 pills each day and do therapies but it's pretty darn close. There are days now where I can go without coughing, something I never dreamed was possible, much less making it to the ripe old age of 47. :)
I wish my brother and best friend Damien was able to take a drug like Trikafta. It's been 23 years since we lost him to cystic fibrosis. He was only 22 with lung function around 20%, struggling for each breath, and yet he still managed to graduate near the top of his class at Towson University with a double major in English and Philosphy. He dragged his oxygen tank up three flights of stairs to work at a local newspaper his senior year. A great smile, a sharp sense of humor, a super smart guy who always cared about doing the right thing and helping others - whether it was volunteering in a kindergarten classroom or helping senior citizens play bingo.
Trikafta only affects 90 percent of the CF population and not all can tolerate it so I'm asking you again for a donation to help others with CF who are desperately in need of a miracle drug like Trikafta to breathe easier. Your donations will also help to find new and even better drugs for me and the 30,000 children and adults wtih CF.
The virtual walk will be on Thursday, May 20 and hopefully we will be back at M&T Bank Stadium next year! I miss walking with all of my friends in person and seeing the CF Community.
If you would like to sponsor me, just click the "Donate to Dean" button! Whatever you can give would be very much appreciated.
Thanks once again for any help you can provide and for all of your donations over the years. I hope everyone is safe and well!
All the best,