I can't believe it's been 21 years since cystic fibrosis stole the life of my brother and best friend, Damien. 21 years. He was only 22 with lung function around 20%, struggling for each breath, and yet he still managed to graduate near the top of his class at Towson University with a double major in English and Philosphy. He dragged his oxygen tank up three flights of stairs to work at a local newspaper his senior year. A great smile, a sharp sense of humor, a super smart guy who always cared about doing the right thing and helping others - whether it was volunteering in a kindergarten classroom or helping senior citizens play bingo. These are just a few of the cool things I remember about my brother.
I too have CF, a lung disease without a cure. Thanks to your donations over the years, average life expectancy is now up to the early 40s and a cure is close, but there is still so much more that can be done for the 30,000 children and adults like me with CF.
Your donations have continued to fund some amazing new drugs and I am still hanging in there! For eight years now, I have been on Kalydeco, which actually helps to treat the underlying cause of CF and not just the symptoms. Thanks to your help, a new combo-therapy drug is expected to be FDA-approved this fall that has been helping to raise lung function 10% to 15% in trials and will affect 90% of all CF patients. This will be a big game changer if approved!
Once again, I am walking again in this year's Great Strides at M&T Bank Stadium on Thursday, May 16 at 6 pm (check in 5:30 pm) to benefit cystic fibrosis. Please help me honor Damien and reach my goal of $7,500!
If you would like to join my team or sponsor me, just click on the appropriate button at the top of this page.
The walk is about a mile around M&T Bank Stadium and features great food, adult beverages and fun. If you need more info or have any questions, please shoot me an email.
Thanks once again for any help you can provide and for all of your donations over the years. I know I wouldn't be here if not for the research you helped to fund. I wish my brother Damien and all the other friends I've lost along the way had access to these new meds in their lifetime.
All the best,
p.s. Your gift is 100-percent tax deductible.