NEVER GIVE UP! These were words our son, John, wrote in a journal that we found after he died. John never gave up, however, his body did and we lost him on February 16, 2000.
BUT...we never gave up praying for and raising funds for a cure. YOU have supported our fundraising since 1983, the year John was born. Together we have raised over a half a million dollars for research.
THIS year, both Jimmy and Matt began taking a new drug, Trikafta. Doctor's say, "This drug may turn a fatal disease into a Manageable disease". Doctor's are now telling CF patients to start saving for retirement if they aren't already.
Jimmy and Matt are living proof of how far CF has come. They have benefitted from the major milestones that have come about through CF research and their committment to their demanding CF care. They have both seen remarkable results quickly from the Trikafta. They are true inspirations to their Dad and I everyday.
Jimmy and Niki welcomed Baby Bennett into the world on August 22nd, a HAPPY, healthy, big boy. Then in November Jim and Matt started Trikafta. Dreams do come true and Prayers are answered.
These stories wouldn't be possible without your support. Please continue to support us as we walk to add tomorrows to the lives of people living with cystic fibrosis- like Jimmy and Matt and to remember those lost to CF, like our John. You can help too.
Please support me! Your gift is 100-percent tax deductible.