
Over the last year or so, Lyra has become more and more aware that she has CF. Phrases like “I hate having CF†and “I'm different from everyone because I have CF†are common occurrences. While the release of Trikafta is amazing and will likely add decades to her life, it has had its toll- affecting her with emotional and behavioral side effects.
Our goal is for Lyra not to feel “differentâ€, not to have to choke down endless pills multiple times a day, not to have to do treatments twice a day, and not to have to suffer through mental challenges just to have a better chance at a healthy life.
Our goal is a cure.
Please consider joining our team and donating to this year's Great Strides!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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