My Great Strides Story
I was diagnosed with Cystic Fibrosis when I was four and a half years old, I spent my life trying to catch my breath and avoid the next infection that could be my next downfall. Unfortunately, I was not very good at either, from the time I was 8 years old till the time I was listed for a double lung transplant I was in and out of the hospital sometimes for months at a time and on IV antibiotics every three months. Missing sleepovers and birthday parties became a common occurrence growing up, and despite everything I could do to stay health CF was still taking its toll. In college I would leave an hour before class just to make it across campus and by the time I graduated my lung function was in the low 30s. After graduation I started a job working in finance, but it soon became too much, and my doctor sat me down and told me that “if I did not stop working, I wouldn’t be able to make it to next year”. He was right. Although I knew it was what I needed, stopping my career sent me into a deep depression and the first time in my life, not only was my lung function still falling but now I had the burden of depression and anxiety. Soon not even the slow pace for not working could not help me and my health plummeted to new lows, and I was placed on the waiting list for a lung transplant. The person I was no longer existed, I didn’t have the energy to make myself food, brush my own hair, even sitting in bed would leave me out of breath. I was on 24/7 oxygen and my body had started poisoning itself from the inside out, so I was placed on bipab. I had had two false calls and I was starting to give up hope. By the second week of June my family knew I did not have a lot of time left and they started to come into town to say goodbye, but my guardian angel had other plans. With 48 hours left to spare my guardian angel came I was given a second chance at life. A life that I never thought was possible. Since my transplant three years ago I have been able to get married, I have been able to move to a new city with my husband, I have been able to live life again. For me, it’s still the little things that get me the most, like belting out my favorite song when I’m alone in the car or being able to take my dog for a walk. It is the little moments that make me so unbelievably grateful for my donor and their family. My transplant saved my life and there is not a day that goes by that I do not forget how or why I am here. Unfortunately, this gift is not only not a cure for CF but it comes with its own challenges and life expectancy. You can help to change that! There is a lot we still don't know about lung transplants, but the CF foundation constantly investing in studies and making advances in Cf transplants. Your donation will help ALL people struggling with this disease. Your donation will help CF one day stand for Cure Found.
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
FOR YOUR SAFETY AND THE SAFETY OF OTHERS: