My Great Strides Story
While March of this year was horrendous, May is so much better and we are taking time out to practice GRATITUDE. Gratitude to be celebrating a wedding ( Dan and Sam) and a 10th anniversary (Pat and Alyse). Gratitude that we can all watch Nolan play baseball without a care in the world. Gratitude to Hopkins surgeons who saved a life (if you know you know). Gratitude to friends who lifted us up. Gratitude to family who never gave up. Gratitude to the CF Foundation who is so close to a cure for that damned Cystic Fibrosis.
Nearly 40,000 people in the United States have CF: a progressive, genetic disease that affects the lungs, PANCREAS, yes pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. While I walk for Dan, I walk for all of the others who are impacted in so many ways.
The CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies, like the miracle drug Trikafta that we saw first hand costs more than $300,00 per person per year!!!
Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind. In our family, nobody fights alone!
By supporting my walk this Thursday you have an opportunity in our lifetime to be part of ending this disease. Together we can make medical history.