Hi All,
It's that time again - time for the Cystic Fibrosis Hagerstown Great Strides walk to raise funds for vital services and programs, advocacy and research to help people with Cystic Fibrosis. As you all know, my nephew, Austin was born with CF. This is a disease with many symptoms, including chronic congestion, coughing, digestive issues, and infections. To help Austin with his fight against CF, he must endure numerous medications, nebulizer treatments, chest physical therapy, and hospital visits. In recent years, you may have heard of TRIKAFTA. It's an effective medication for people with CF (about 90% of the people with CF can use this medication). However, people like Austin with a rare mutation (sometimes referred to as the "10%") aren't eligible for this treatment. We need to find an effective treatment for everyone with CF, better yet a cure!
Cystic Fibrosis does not receive any federal funding. Great Strides is a huge fundraiser for CF. The first Great Strides walk I attended was in Annapolis, in 2001 and I've been participating every year, including creating my own "Team Feets" in Hagerstown.
To participate, just click on the "Join Heather's Team" button. From there, you can make a donation and start fundraising. If you prefer, you can also make a donation by clicking the "Donate to Heather" button. By joining our Great Strides team and making a donation, you will part of a tenacious and passionate group of people committed to ending this disease.
If you would like to join us for the walk, below is the information and the more, the merrier:
Saturday, May 4
Fairgrounds Park
Registration: 11:00 am
Walk: 12:00 pm
Together, let's make CF stand for Cure Found!
Thank you!!
Heather
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.