There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support my efforts. I work closely with the CF community as a physical therapist at Johns Hopkins Hospital and cystic fibrosis center. Covid-19 aside, this has been an incredible year for the CF community! The release of a new medication, effective for many people living with CF, has been an absolute game changer! It couldn't have happened without generous donations from people like you, and the tireless commitment of the CF Foundation. This drug attacks the disease at the cellular level and can (and has) dramatically change symptoms in teens and adults with the most common genetic mutation for CF. This drug is anticipated to have FDA approval for use with children 6-12 years old in the next couple months which will further improve the long term health of those living with CF! Suddenly people with CF are finding it easier to breathe. They are wanting to exercise- because they feel well enough to do so! Coughing has decreased. Lung functions are improving, and all of this means the quantity and quality of life for people with CF is on the rise!
Unfortunately, this drug still comes too late for many and because CF is caused by many different genetic mutations, it doesn't work for everyone. It is also not a cure but an expensive medication that must be taken twice daily, in addition to other therapies, to keep the disease at bay. I walk today to continue the quest for an effective treatment for everyone living with CF, and ultimately, a cure! I walk to remember the CF warriors who have passed too soon and to honor the warriors who live with this disease.
It has been a difficult year, but your support still matters. Your donation supports the research that has already changed lives in the CF community, and it is 100% tax deductible. Give if you can. Keep the CF community in your hearts even if you can't. Thank you to everyone who has supported me and this cause in the past and present! I appreciate all your love for the CF community!