My neice Aurora is 11 years old. She was born with Cystic Fibrosis. Before she was born, I had never heard of Cystic Fibrosis. When my sister told me that she was diagonised with CF, I had no idea what it meant or what to expect. Now 7 years later, I know so much about Cycstic Fibrois. I know that it is a life shorting disease. I know that it makes Aurora have to be more careful than she should have to be at such a young and carefree age. I know that it makes my sister spend much of her day focused on what treatment, enzyme, healthy foods and supplements Aurora needs next. I know it has brought much worry to our entire family....
But I also know that Cystic Fibrosis has made us all stronger! I know it has made us appreicate each day that we have together. I know it makes us see the sun shine a bit brighter. I know it makes the sound of Aurora's adorable laugh, that much more enjoyable to hear.
Cystic Fibrois took us all off guard. It was a big shock and brought great worry to our family. But in the past 7 years, we have become stronger and BRAVER THEN EVER!! We are committed to helping find a cure for this awful disease! We will not stop until we help make CF stand for CURE FOUND!
Each year we come together to walk in the Annapolis Great Strides walk. This year the walk is Saturday, June 2nd at 11am at the Navy Stadium. We walk to raise extremely important money for the Cystic Fibrosis Foundation. We also walk to support Aurora, Vanessa and Jeff!! There isn't a day that goes by that I don't think about and pray for Aurora, and this walk is our way of showing them how much we want to help support them! We will never be able to walk in their shoes for a day or week, to experience the constant stress and worry, but we can walk FOR THEM on this one day of the year to show OUR SUPPORT!!
PLEASE JOIN ME IN WALKING WITH US THIS YEAR! AND IN DONATING ANY AMOUNT YOU CAN. EVERY DOLLAR COUNTS AND IS SO VERY APPRECIATED!! Thank you!!
What is Cystic Fibrosis? CF is an inherited, life-threatening disease with no cure YET. People with CF have two copies of a defective gene that causes the body to produce abnormally thick, sticky mucus, which clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty with absorbing nutrients. In 1955 people born with CF were not expected to live long enough to attend elementary school. Today the average life expectancy for people with CF is 37. This is extraordinary progress BUT IT IS NOT ENOUGH! And it is NOT the reality we expect for our Aurora, please help us change these statistics!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.