Over the last year or so, Lyra has become more and more aware that she has CF. Phrases like "I hate having CF" and "I'm different from everyone because I have CF" are common occurrences. While the release of Trikafta is amazing and will likely add decades to her life, it has had its toll- affecting her with emotional and behavioral side effects.
Our goal is for Lyra not to feel "different", not to have to choke down endless pills multiple times a day, not to have to do treatments twice a day, and not to have to suffer through mental challenges just to have a better chance at a healthy life.
Our goal is a cure.
Please consider joining our team and donating to this year's Great Strides!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.