Join Jessica's Mafia For A Cure to help blow CF away!!!! My friends and family fight right along side me in every day life and in helping fundraise to find new treatments and a cure. We have been doing the Great Strides Walk since the begining and we look forward to it each year. I was born with Cystic Fibrosis and diagnosed at age 3. Most people if you were to ask them, they have no idea what CF is. Cystic Fibrosis is a life threatening genetic lung and digestive disease. In the United States alone about 30,000 children and adults suffer from this disease (70,000 worldwide) and about 1,000 new cases are diagnosed each year. CF is caused by a defective gene and its protein product that causes unusually thick and sticky mucus. This mucus clogs up the lungs and leads to life threatening lung infections. It obstructs the pancreas natural enzymes that keep it from breaking down and absorbing food properly. Symptoms that a CF patient would have would include salty tasting skin, persistent cough a lot of times with phlegm, frequent lung infections, wheezing and shortness of breath, poor growth/weight gain regardless of appetite and frequent greasy/bulky stools or trouble with bowel movement. That is just the basic breakdown of what Cystic Fibrosis is and what comes along with having this disease. But it goes much deeper and more complicated than that on every level. We need your help in making that progress to a CURE and we are so close. In 2012 the first drug was approved that treats the underlying cause of CF, that's GREAT NEWS! Today I am 41yrs old and going strong thanks to all the breakthroughs we have had in medicine and treatments. I am on the newest breakthrough that was approved in 2019 called Trikafta!! It has been life changing and that would be an understatement! No matter how much progress is made we still lose countless young lives every day to this horrible disease.
BECAUSE OF THE EFFORTS OF THE CF FOUNDATION AND EVERYDAY PEOPLE LIKE YOU WHO DONATE TO HELP FUND RESEARCH FOR NEW TREATMENTS, EDUCATION, AND CF CARE TO NAME A FEW. CF PATIENTS LIKE MYSELF AND OTHERS AROUND THE NATION GET TO EXPERIENCE THOSE TOMORROWS WE WALK FOR!!!! THIS YEAR JESSICA'S MAFIA FOR A CURE IS BACK CONTINUING TO HELP BLOW CF AWAY! WE ALWAYS TRY TO GO BIGGER AND BETTER EVERY YEAR. I ENCOURAGE YOU TO PLEASE SHARE THIS LINK TO MY PAGE WITH OTHERS TO HELP GET DONATIONS. I THANK YOU VERY MUCH FROM THE BOTTOM OF EVERY CF PATIENTS HEART <3 REMEMBER TO ALWAYS LIVE*LAUGH*LOVE :) JOIN ME IN THE FIGHT!!!!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.