Crystal Ginn

Annabelle Iris Rose

​My fourth and final baby. I never did any genetic testing with my previous pregnancies and never had any problems with them “failing” the new born screening test. At just 6 days old I got the news your baby has CF. My whole world came crashing down. We were immediately sent to specialist and a CF clinic to confirm the diagnosis and start the next steps to the process.

Fast forward we are 9 months old now we are finally gaining weight at an acceptable rate for her doctors, we have our chest therapy vest, multiple nebulizer treatments daily and of course our favorite Creon before every feeding. 

This is not how I pictured this final baby journey but I am here for it and learning more everyday. 

My Great Strides Story

There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.

Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.