It’s that time of year again! The Gunky Gang is back. As many of you know my siblings and I all have Cystic Fibrosis. This past year has brought a whole new challenge for the B’s.
This last December I was hospitalized for the first time in 3 years (on my 3 year anniversary) This visit brought on a whole new challenge of B Cepcia for me. I had to quarantine from my siblings for 2 months. *knock on wood* I have been B Cepcia free for around a month now!
I have been grateful to start a new life, make new friends, and be able to branch out and start my own journey without CF slowing me down.
There isn’t a day that goes by that I don’t think of the lost Cysters and fibros I have lost. I take every breath for them. I laugh without coughing for them. I share my CF journey everyday for them.
I have been so blessed to be able to be on the drug trikafta. A drug that has given me a second chance on life. A chance to plan a future.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.